Fittingly, I will be spending part of this 25th Anniversary of the Americans with Disabilities Act at work.     It is a good reminder for me to step back from obsessing over career trajectories and picking up more shifts and so on to think about the fact that it is in part because of the… Read More ADA25


We talk a lot about expectations in the disability community – about how they are too low for people with disabilities, about how children with disabilities are unchallenged and under-estimated, about how we need to set higher expectations for everyone. But sometimes, we underestimate ourselves. Today was one of those days for me. I was… Read More Expectations


In case you ever need to know, the sure-fire way to seriously piss me off is to tell me that I am suffering from Moebius syndrome. The people of Nepal are suffering. People and families who are going hungry or experiencing great trauma are suffering. I am living, not suffering. Yeah, it sounds like I’m… Read More SufferIng