Moebius Syndrome, surgery

nothing’s ever set in stone

One of my good friends with Moebius syndrome had facial surgery last week as a middle-aged adult.  It was something he’d been thinking about and decided the time was right to go ahead with it.  I have to say I really like that medical advances have made this possible, and that the window of “doing something” is much more open.

I’m taking a wait and see approach with things.  I was too traumatized by prior surgeries to think about any medical interventions as a pre-teen when surgery first became an option.  It literally gave me anxiety attacks just thinking about it.  And by the time I was older, I didn’t think it would make much of a difference, I would still have a smile that didn’t look completely normal, why not just keep it at my natural one?  Who knows if I’d had less movement what I would have thought.  It might have been much different.

And now?  I’m glad I have options available to me and that if I’m ever not happy with how I look as I get older (what does Moebius do to aging, anyway?) I’ll have options at my disposal to feel better about myself if it ever comes to that.  I’m excited that medicine and surgery have evolved enough that this is a reasonable approach to take, even though I have no idea if I will ever decide to use it.  Who knows what the future will bring?

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