chronic pain, Moebius Syndrome

we interrupt life for a teeny, tiny…. whiny post

Today I’m in pain.  And it really sucks.  Thankfully it’s physical pain which is at least a bit better than emotional pain… but it is still no fun.  Last week I fell down.  It was my fault, I knew better than to think I could balance on one leg, but of course being me I tried to multitask… and promptly did a knee-plant on my bad leg.  Figures.  So it’s been hurting on and off for the last week, don’t know if walking around and doing yoga like I usually do is bad or good for it, but I can’t just sit around… so I’m (perhaps stupidly) forging ahead).

I’ve had chronic pain for as long as I can remember.  I literally can’t think of a time when I didn’t have it.  It’s that weird kind of pain that’s not bad enough to stop you from going about your day to day life, but bad enough so that an hour or so of walking leaves me in excruciating pain.  And something like running is out of the question (well, if I was coordinated enough to do it without face planting myself on the sidewalk…)

This whole internal dialogue got me to thinking about the things I don’t know about other people’s experiences with Moebius.  It’s kind of weird to walk up to a group of people, even if you know them, and announce yourself as being in pain all the time!  I mean, it at once seems very trivial and unnecessary.  I pretty much know that mine is due to how Moebius effects me personally, so I don’t know what good it would do to know that other people do or do not have the same effects? I don’t know!  But I wonder sometimes…

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