awareness, Moebius Syndrome

"Hope is the bravest most beautiful bird In the sky"

This is the story
Of a bird with no wings
But certain that it can fly
Sailing on love
Into the head winds
Forcing it’s way by and by

If only we were
As strong as this bird
Our spirit would never die

What do we name it
Hope is the right word
Hope is the bravest most beautiful bird
In the sky

Hope is a bird
Flies higher than others
And keeps all our dreams alive
Free of all doubt
Perfectly fearless
Fed by its will to survive

Imagine ourselves
Becoming this bird
We can when we dare to try
And see ourselves flying
Over the mountain
Hope is the bravest most beautiful bird
In the sky

Only hope can light the way
Only hope can heal the heart
Only hope can keep the clouds
From hiding the moon and the stars

If only we were
As strong as this bird
Our spirit would never die

What do we name it
Only one word
Hope is the bravest most beautiful bird
Hope is the bravest most beautiful bird
In the sky

Only hope can light the way
Only hope can heal the heart
Only hope can keep the clouds
From hiding the moon and the stars

This was a story
Of a bird without wings
And rose above everything
Never once giving up hope – Hope (2008), written by Paul Hampton, sung by Idina Menzel

Tonight I’m thinking about hopes… my own hopes, the hopes of people I see posting about Moebius Syndrome Awareness Day. In many ways, they are the same. In some ways, they are different. In some ways I feel battle-weary. I don’t feel a particular desire to shout from the rooftops tomorrow or anything. I don’t think that would help me very much.

But I love the expressions of hope that have been shown this week, hope for the future, hope for a better world for children and families. The idea that people don’t have to wait years or decades to meet someone who looks like them. So… I’m embracing the surge of hope I feel in the Moebius community right now. Hoping that will propel people to great things this year…

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