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Awareness & What It Means

This month is, super-coincidentally, an awareness month for 2 conditions I have – a craniofacial condition (Moebius syndrome) & alopecia, a much more common autoimmune disease.

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Besides the fact that I’m a bit bewildered by the fact that there are two different craniofacial months each supported by different organizations, I think it’s great to see what various organizations are doing and how they incorporate other organizations to spread the word.

The American Girl company posted a great photo of their “wigless” dolls – perfect for young girls with alopecia or who are undergoing cancer treatments. I loved that it was important enough to feature.

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I seeing RJ Palacio, who wrote the children’s book Wonder – about a boy with a craniofacial condition – speak tonight and I really think she does a lot to spread the word about craniofacial conditions. Or at least I think it could, so I hope it continues to spread both her message about kindness and about awareness for craniofacial conditions.

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